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UPDATE: dying 10-year-old Sarah Murnaghan RECEIVES her lung transplant!


Sarah Murnaghan lung transplant case: Sebelius ordered to make exception on transplant

A federal judge on Wednesday ordered HHS Secretary Kathleen Sebelius to allow 10-year-old Sarah Murnaghan to be moved to the adult lung transplant list, giving her a better chance of receiving a potentially life-saving transplant.

The quick and unusual ruling, made after a hastily scheduled emergency hearing, follows a campaign by the family and some members of Congress to pressure the Obama administration to change a federal policy that puts children under age 12 at the bottom of the list of those who can receive donated adult lungs.

http://www.politico.com/story/2013/06/sarah-murnaghan-lung-transplant-ruling-kathleen-sebelius-92299.html

Kathleen Sebelius at center of storm over child’s lung transplant

The plight of a dying 10-year-old girl in urgent need of a lung transplant has been taken up by some GOP lawmakers, and it’s shining a light on what critics say is a questionable policy that puts children further down the waiting list.

The family of the Pennsylvania girl, Sarah Murnaghan, has garnered the media spotlight, on cable news and in other outlets. And some GOP congressmen have joined the fray, quite literally “begging” HHS Secretary Kathleen Sebelius to intervene and save the girl’s life. Both Pennsylvania senators — a Democrat and a Republican — have also written on the child’s behalf.

http://www.politico.com/story/2013/06/kathleen-sebelius-childs-lung-transplant-92237.html

Kathleen Sebelius won’t waive regulation for girl with five weeks to live: ‘Someone lives and someone dies’

Health and Human Services Secretary Kathleen Sebelius rebuffed an appeal from Rep. Lou Barletta on behalf of a girl who needs a lung transplant but can’t get one because of a federal regulation that prevents her from qualifying for a transplant.

VIDEO:  

 

http://washingtonexaminer.com/sebelius-wont-waive-regulation-for-girl-with-five-weeks-to-live-someone-lives-and-someone-dies/article/2531097

Sebelius: I can’t intervene in Sarah Murnaghan’s transplant case

Kathleen Sebelius told a Congressional panel Tuesday that medical experts should make those decisions.

But relatives of 10-year-old Sarah Murnaghan said Sebelius’ remarks confused them because they want a policy change for all preadolescent children awaiting lung transplants, not just Sarah.

http://abclocal.go.com/wpvi/story?section=news/local&id=9126942

Dying Girl, 10, Refused Lung Transplant By Bureaucracy

Sarah Murnaghan may not live much longer unless she gets a new set of lungs. She’s at the top of the list for any pediatric lungs that might become available in her area, but for the time being only adult lungs are available. While doctors think modified adult lungs would work for Sarah, she doesn’t have access to the available organs unless every adult waiting for lungs in the area turns them down, creating an unimaginable barrier that could result in a tragic death.

http://hollywoodlife.com/2013/06/03/pennsylvania-girl-lung-transplant-law-sarah-murnaghan/

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